ALS Clinical Trial Research - The Northeast ALS Consortium (NEALS)

ANNUAL MEETING- The Northeast ALS Consortium (NEALS)


 

9TH ANNUAL NEALS MEETING
OCTOBER 28TH - 29TH, 2010

Doubletree Hotel
Bethesda, MD


*Committee meetings & trainings on Wednesday, October 27th


REGISTRATION
Registration is now open!  Please log on to the members only portal to register. If you have forgotten your NEALS user name or password, or do not have one, please contact Breen Power .


SCHEDULE OF EVENTS
Please see the most updated schedule of events for a schedule of trainings, committee meetings, and trial meetings.


HOTEL RESERVATIONS

To reserve a hotel room at the Doubletree Bethesda at the group rate of $189.00 per night, please visit: http://www.doubletreebethesda.com/
Group/Convention Code: "ALS"

If you experience any problems securing the group rate, please immediately call the hotel at 301-652-2000.

To reserve a hotel room by phone, please call 1-800-222-TREE or 301-652-2000.  Attendees must identify themselves as part of the "NEALS Annual Meeting" to receive the group rate.

The cut off date for the group rate is of 5:00 p.m. EST on Friday, October 8th, 2010.


NON-MEMBERS

If you are an ALS researcher, foundation, or company conducting ALS research and are interested in attending the NEALS meeting and/or trainings, please contact Breen Power, NEALS Program Manager.


EXHIBITORS

For more information on exhibit opportunities,
please contact Breen Power, NEALS Program Manager.

2010 CALL FOR ABSTRACTS
We are pleased to announce that
NEALS will showcase membership research at our 9th Annual Northeast ALS Consortium Meeting on October 28th-29th, 2010 at the Doubletree Hotel in Bethesda, Maryland.

Abstracts are due to Breen Power at bpower@partners.org by
September 1st, 2010.

Call for Abstracts and NEALS Abstract Submission Form

 

NEALS Trainings
9th Annual NEALS Meeting

Doubletree Hotel, Bethesda, MD

NEW! Biostats Training
Wednesday, October 27th, 2010
2:00-5:00 PM
NEALS training for biostatisticians interested in ALS. The training will focus on statistical issues in studies of ALS. The training will cover issues pertaining to analysis methods, trial design, and observational studies.

Project Management Training
Friday, October 29th, 2010
1:00-3:00 PM
Training developed for Project Managers who act, or will be acting, as a "Coordination Center" to manage one or more multi-center investigator sponsored trials.  Roles and responsibilities, with specific focus on managing activities during all phases of a clinical study including: protocol development, tasks prior to study start, active study start up, active study/maintenance, database lock, and study close out will be covered. 

*This training will not cover site-specific topics for site study coordinators. Individuals interested in such topics are encouraged attend the "Site Management Training" session.

Site Management Training
Wednesday, October 27th, 2010
12:00-2:00 PM
Training developed for site investigators and study coordinator. The training will focus on: GCP compliance, organizational tools and tips, staffing needs, recruitment strategies and preparing for monitoring visits.

Outcomes Measurement Training
Wednesday, October 27th, 2010
2:00-5:00 PM
Training developed for NEALS Clinical Trial Evaluators. A review for current evaluators, and training for new evaluators, for the following outcome measure assessments: ALSFRS-R, Slow Vital Capacity, and Hand Held Dynamometry.

MUNE Training 
Wednesday, October 27th, 2010
12:30-2:00 PM
Training developed for NEALS Clinical Trial Evaluators. A review for current evaluators, and training for new evaluators on Motor Unit Number Estimation (MUNE).

Electrical Impedance Myography (EIM) Training
Friday, October 29th 2010
1:00 – 3:00 PM
Training developed for NEALS Clinical Trial Evaluators and site investigators. Basic scientific background on this technique, hands-on training, and approaches to data analysis for this outcome measure will be provided.

ATLIS Training
Wednesday, October 27th, 2010
5:00-7:00 PM
Training developed for NEALS Clinical Evaluators and site investigators. A review for current ATLIS users and training for those interested in this new device to measure isometric strength using a fixed dynamometer.


All trainings are free of cost to NEALS members. Please register for trainings on the members-only portal.

 

The Northeast ALS Consortium (NEALS) 13th St Bld 149 Rm 2274 Charlestown MA  02129
ALS Clinical Research Trials - ALS Clinical Trials - ALS Trials - ALS Studies
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