Therapeutic Inquiries

Dr. Merit Cudkowicz, NEALS Co-Director
Massachusetts General Hospital East
Neurology Clinical Trials Unit
Building 149, Room 2274
13th Street
Charlestown, MA 02129
Ph: (617) 724-1873
Fx: (617) 724-7290
mcudkowicz@partners.org

Dr. Jeremy Shefner, NEALS Co-Director
SUNY Syracuse Health Center
750 East Adams St.
Syracuse, NY 13210
Ph: (315) 464-4627
Fx: (315) 464-5303
shefnerj@upstate.edu

Current Trials

NEALS Program Manager
Massachusetts General Hospital East
Neurology Clinical Trials Unit
Building 149, Room 2274
13th Street
Charlestown, MA 02129
Ph: (617) 724-7398
Toll free: 1-877-458-0631
Fx: (617) 724-7290
mghneuroclinicaltrialsunit@partners.org

Neurology Clinical Studies/Trials Information Telephone Numbers

For General Information on Studies or Trials: 617-643-3980

For Information on the Arimoclomol Trial: Toll Free number: 1-877-458-0631

NEALS Special Events, Website, and Membership

NEALS Program Manager
Massachusetts General Hospital East
Neurology Clinical Trials Unit
Building 149, Room 2274
13th Street
Charlestown, MA 02129
Ph: (617) 724-7398
Fx: (617) 724-7290
mghneuroclinicaltrialsunit@partners.org

NEALS Clinical Centers

Baylor College of Medicine (Houston, TX)

Baylor College of Medicine MDA/ALS Clinic
6501 Fannin Street, NB302
Houston, TX 77030
Phone: (713) 798-5993 / Fax: (713) 798-1486
Dr. Yad Harati

 

Baystate Medical Center (Springfield, MA)

3300 Main Street
Springfield, MA 01199
Phone: (413) 794-4754 / Fax: (413) 794-3058
Dr. George Baquis
Dr. Carmel Armon

 

Beth Israel Deaconess Medical Center (Boston, MA)

Beth Israel Deaconess Medical Center Neuromuscular Division
330 Brookline Avenue
Boston, MA 02215
Phone (main hospital phone): (617) 667-7000
Dr. Seward Rutkove
Dr. Elizabeth Raynor

 

Beth Israel Medical Center-Albert Einstein College (New York, NY)

Phillips Amb Care Center, BIMC
10 Union Square East, Suite 2 Q
New York, NY, 10003
Phone: (212) 844-8490 / Fax: (212) 844-8481
Dr. Stephen N. Scelsa

 

Boston University Medical Center (Boston, MA)

BU Medical Center Neuromuscular Disease Program
720 Harrison Avenue, Suite 707
Boston, MA 02118
Phone: (617) 638-8456 / Fax: (617) 638-7997
Dr. Janice Wiesman

 

Brigham and Women's Hospital (Boston, MA)

BWH Department of Neurology, Neuromuscular Service
75 Francis Street
Boston, MA 02115
Phone: (617) 732-8046 / Fax: (617) 730-2885
Dr. Anthony Amato

 

Carolinas Medical Center (Charlotte, NC)

Carolinas Neuromuscular/ALS-MDA Center
1540 Garden Terrace, Suite 301
Charlotte, NC 28203
Phone (main hospital phone): (704) 355-2000
Dr. Elena Bravver

 

Cedars-Sinai Medical Center (Los Angeles, CA)

Director of the ALS Program
Neurology Division
8730 Alden Drive, E204
Thallians Building
Cedars-Sinai Medical Center
Los Angeles, CA 90048
Phone (310) 423-1806 / (310) 423-0148
Dr. Abirami Muthukumaran

 

Cleveland Clinic Foundation (Cleveland, OH)

Cleveland Clinic Foundation Section of Neuromuscular Disease
Department of Neurology, S90
9500 Euclid Avenue
Cleveland, OH 44195
Phone: (216) 445-2988 / Fax: (216) 445-1778
Dr. Erik Pioro

 

Columbia University (New York, NY)

Columbia University/Eleanor and Lou Gehrig MDA/ALS Research Center
The Neurologic Institute
710 West 168th Street, 9th Floor
Phone: (212) 305-2940 / Fax: (212) 305-2750
Dr. Hiroshi Mitsumoto
Dr. Paul Gordon

 

Cornell University (New York, NY)

Cornell Medical Center
525 E 68th Street
#F610
New York, NY 10021-4870
Phone: (212) 746-6575 / Fax: (212) 746-8532
Dr. M. Flint Beal

 

Dartmouth Hitchcock Medical Center (Lebanon, NH)

Department of Neurology
1 Medical Center Drive
Lebanon, NH 03756
Phone: (603) 650-2636 / Fax: (603) 650-4161
Dr. Jeffrey Cohen

 

Drexel University (Philadelphia, PA)

The ALS Center of Drexel (formerly MCP Hahnemann) University
245 North 15th Street
Philadelphia, PA 19103
Phone: (215) 762-7692 / Fax: (215) 762-3899
Dr. Terry Heiman-Patterson
Dr. Anahita Deboo

 

Duke University (Durham, NC)

Duke University Medical Center
Box 3333
Durham, NC 27705
Phone: (919) 668-2839 / Fax: (919) 668-2901
Dr. Richard Bedlack
www.dukealsclinic.com

 

Emory University (Atlanta, GA)

Emory University
The ALS Center at Emory University
101 Woodruff Circle, Suite 6000
Atlanta, GA 30322
Mail Stop: 1930-001-1AN
Phone: 404-778-3754 / Fax: 404-778-3495
Dr. Jonathan Glass
Dr. Michael Benatar
Dr. Jaffar Khan

 

George Washington University (Washington, DC)

Department of Neurology
2150 Pennsylvania Avenue, NW
7th Floor
Washington, DC 20037
Phone: (202) 741-2657 / Fax: (202) 741-2721
Dr. Elliam Bayat

 

Hennepin County Medical Center (Minneapolis, MN)

Hennepin Faculty Associates
Dept of Neurology
701 Park Avenue, P5-200
Minneapolis, MN 55414
Phone: (612) 873-2595 / Fax: (612-904-4270
Dr. Ezgi Tiryaki

 

Henry Ford Hospital (Detroit, MI)

Harry J. Hoenselaar ALS Clinic
2799 West Grand Blvd
Detroit, MI 48202
Phone: (313) 916-2594 / Fax: (313) 916-3014
Dr. Daniel Newman

 

Indiana University (Indianapolis, IN)

Indiana University ALS Program at Wishard Health Services
1050 Wishard Boulevard
Neurology Dept. Regenstrief 6th Floor
Indianapolis, IN 46202
Phone: (317) 274-4488 / Fax: (317) 278-4918
Dr. Robert Pascuzzi

 

Johns Hopkins University (Baltimore, MD)

The Johns Hopkins Hospital, Neuromuscular Service
Meyer Building, Room 6-113
600 N. Wolfe Street
Baltimore, MD 21287
Phone: (410) 614-3846 / Fax: (410)-955-0672
Dr. Jeffrey Rothstein
Dr. Nicholas Maragakis

 

Lahey Clinic (Burlington, MA)

Lahey Clinic Medical Center
Department of Neurology
41 Mall Road
Burlington, MA 01805
Phone: (781) 744-8632 / Fax: (781) 774-5471
Dr. James Russell

 

Massachusetts General Hospital (Boston, MA)

Mass. General Hospital MDA Neuromuscular Clinic
Wang ACC Building, Room 835
Boston, MA 02114
Phone: (617) 724-3914 / Fax: (617) 724-7290
Dr. Robert H. Brown
Dr. Merit Cudkowicz
Dr. Lisa Krivickas

 

Mayo Clinic Jacksonville (Jacksonville, FL)

Mayo Clinic Jacksonville, Department of Neurology
4500 San Pablo Road
Jacksonville, FL 32224
Phone: (904) 953-2272 / Fax: (904) 953-0757
Dr. Kevin Boylan

 

McGill University-Montreal Neurological Institute (Montreal, QC, Canada)

3801 University Avenue
Montreal, QC, Canada H3A 2B4
Phone: (514) 398-3868 / Fax: (514) 398-1285
Dr. Angela Genge

 

Medical College of Wisconsin / Froedtert Memorial Lutheran Hospital (Milwaukee, WI)

Froedtert & Medical College of Wisconsin Neuromuscular Program
9200 West Wisconsin Avenue
Milwaukee, WI 63226
Phone: (414) 805-5224 / Fax: (414) 259-0469
Dr. Paul Barkhaus

 

Medical University of South Carolina (Charleston, SC)

96 Jonathan Lucas Street, 309 CSB
P.O.Box 250606
Division of Neurology
Charleston, SC 29425
Phone: (843) 792-3221 / Fax: (843) 792-8626
Dr. David E. Stickler

 

Methodist Neurological Institute (Houston, TX)

The Methodist Neurological Institute
6560 Fannin, Suite 902
Houston, TX 77030
Phone: (713) 441-3765
Dr. Stanley Appel

 

Mount Sinai (New York, NY)

Division of Neuromuscular Disease & MAD/LS Program
1 Gustave L. Levy Place, Box 1052
New York, NY 10029
Phone: (212) 241-8674 / Fax: (212) 987-7363
Dr. Dale Lange

 

Ohio State University (Columbus, OH)

Division of Neuromuscular Disease
The Ohio State University
1654 Upham Drive
Columbus, OH 43210
Phone: (614) 293-4981 / Fax: (614) 293-6111
Dr. John T. Kissel

 

Oregon Health & Science University (Portland, OR)

3181 SW Sam Jackson Park Road
Mail Code: CR-120
Portland, OR 97239
Phone: (503) 494-1769 / Fax: (503) 494-0968
Dr. Jau-Shin Lou

 

Pennsylvania State University School of Medicine (Hershey, PA)

Penn. State Hershey Medical Center, ALS Clinic
Department of Neurology, H037
500 University Drive
Hershey, PA 17033
Phone: (717) 531-1802 / Fax: (717) 531-0814
Dr. Zachary Simmons

 

Phoenix Neurological Associates-Samaritan ALS Clinic (Phoenix, AZ)

1331 N. 7th Street, Suite 350
Department of Neurology, H037
Phoenix, AZ 85006
Phone: (602) 258-3354 / Fax: (602) 258-3368
Dr. Todd Levine
Dr. David Saperstein

 

Providence ALS Center (Portland, OR)

5050 NE Hoyt Street
Suite 315
Portland, OR 97213
Phone: (503) 963-3100 / Fax: (503) 215-2375
Dr. Kimberly Goslin

 

Rhode Island Hospital (Providence, RI)

Rhode Island Hospital Neurology Services
593 Eddy Street, APC 689
Providence, RI 02903
Phone: (401) 444-8761 / Fax: (401) 444-5929
Dr. George Sachs

 

Robert Wood Johnson Medical School (New Brunswick, NJ)

UMDNJ
Neuromuscular and ALS Center of RWJ Medical School
97 Paterson Street
New Brunswick, NJ 08901
Phone: (732) 235-7340 / Fax: (732) 235-7344
Dr. Jerry Belsh

 

Saint Louis University (St. Louis, MO)

Neuromuscular Division
1438 S. Grand Boulevard
St. Louis, MO 63104
Phone: (314) 977-4860 / Fax: (314) 268-7105
Dr. Ghazala Hayat

 

Stanford University (Stanford, CA)

Stanford Neuromuscular Program
Boswell Building, Room A343
300 Pasteur Drive
Palo Alto, CA 94305
Phone: (650) 723-5184 / Fax: (650) 725-7459
Dr. S. Charles Cho

 

State University of New York at Stony Brook (Stony Brook, NY)

Neuromuscular Disease Center at Stony Brook
University Medical Center
Stony Brook, NY 11794
Phone: (631) 444-8188
Dr. Rahman Pourmand

 

SUNY Upstate Medical University (Syracuse, NY)

University Hospital ALS Research and Treatment Center
750 East Adams Street, 6610UH
Syracuse, NY 13210
Phone: (315) 464-5302 / Fax: (315) 464-5303
Dr. Jeremy Shefner

 

Texas Neurology, PA (Dallas, TX)

6301 Gaston Avenue
Suite 400 West Tower
Dallas, TX 75214
Phone: (214) 827-3610 / Fax: (214) 821-4017
Dr. Daragh Heitzman

 

University of Arkansas (Little Rock, AR)

Arkansas ALS/Motor Neuron Disease Clinic
4301 W. Markham, # 500
UAMS
Little Rock, AR 72205
Phone: (501) 686-5135 / Fax: (501) 686-8689
Dr. Stacy Rudnicki

 

University of British Columbia (Vancouver, British Columbia, Canada)

Diamond Health Care Centre
Vancouver General Hospital
8th Floor, 2775 Laurel Street
Vancouver, BC
Canada V5Z 1M9
Phone: 604-875-4247 / Fax: 604-875-4471
Dr. Hannah Briemberg

 

University of California Irvine (Orange, CA)

UCI MDA/ALS Center
101 The City Drive S
Building 22C, Route 13
Orange, California 92868
Phone: 1-877-UCI-DOCS / Fax: (714) 456-6908
Dr. Tahseen Mozaffar

 

University of California Los Angeles (Los Angeles, CA)

UCLA ALS Research Clinic, Reed Neurological Research Center
710 Westwood Plaza
Los Angeles, CA 90095
Phone: (310) 794-1195 (neurological services number) / Fax: (310) 794-7491
Dr. Michael Graves
Dr. Martina Wiedau-Pazos

 

University of California San Diego (La Jolla, CA)

Department of Neurosciences
9500 Gilman Drive MC0670
La Jolla, CA 92093-0662
Phone: (858) 534-7899 / Fax: (858) 534-3074
Dr. Nayan P. Desai
Dr. Don Cleveland, Scientific Advisor

 

University of California San Francisco (San Francisco, CA)

UCSF ALS Center
350 Parnassus Avenue, Suite 500
San Francisco, CA 94117
Phone: (415) 476-7581 / Fax: (415) 502-4868
Dr. Catherine Lomen-Hoerth

 

University of Chicago (Chicago, IL)

University of Chicago MDA/ALS Clinic
5841 S. Maryland Ave
MC 2030
Chicago, IL 60637
Phone: (773) 702-5546 or (773) 702-6221 / Fax: (773) 702-9076
Dr. Kourosh Rezania
Dr. Raymond Roos

 

University of Colorado (Aurora, CO)

University of Colorado Health Science Center
Department of Neurology
P.O. Box 6511, Mail Stop B-185
Aurora, CO 80045
Phone: (303) 724-2209 / Fax: (303) 724-2202
Dr. Bjorn Oskarsson

 

University of Connecticut (Farmington, CT)

University of Connecticut Health Center Motor Neuron Disease Clinic
Department of Neurology, MC 184
263 Farmington Ave
Farmington, CT 06030
Phone: (860) 679-3186 / Fax: (860) 679-4446
Dr. Kevin Felice

 

University of Illinois at Chicago (Chicago, IL)

University of Illinois at Chicago Dept. of Neurology and Rehabilitation
912 South Wood Street, 855N, MC 796
Chicago, IL, 60612
Phone: (312) 413-7729 / Fax: (312) 413-5780
Dr. Julie Rowin

 

University of Kansas (Kansas City, KS)

University of Kansas Medical Center Department of Neurology
3901 Rainbow Boulevard, Mailstop 2012
Kansas City, KS 66160
Phone: (913) 588-6094 / Fax: (913) 588-6948
Dr. Richard Barohn
Dr. April McVey

 

University of Kentucky (Lexington, KY)

UK Health Center Department of Neurology/Neuromuscular Disorders Program
445 Kentucky Clinic (fourth floor)
740 S. Limestone
Lexington, KY 40536
Phone: (859) 323-6702 / Fax: (859) 323-5943
Dr. Edward Kasarskis

 

University of Miami (Miami, FL)

University of Miami Kessenich Family MDA ALS Center
Professional Arts Center
1150 NW 14th Street, Suite 700
Miami, FL 33136
Phone: (305) 243-7400 or toll-free: 1-800-690-ALS1 / Fax: (305) 243-7525
Dr. Khema Sharma
Dr. Ashok Verma

 

University of Nebraska

2631 S. 70th Street
Lincoln, NE 68506
Phone: (402) 483-7226 / Fax: (402) 483-5440
Dr. Gary Pattee

 

University of Nevada

University of Nevada School of Medicine
880 Seven Hills Drive, Suite 200
Henderson, NV 89052
Phone: (702) 731-9110 / Fax: (702) 836-1204
Dr. David L. Ginsburg

 

University of Pittsburgh (Pittsburgh, PA)

UP Medical Center Department of Neurology/Division of Neuromuscular Disease
F875 PUH 200 Lothrop Street
Room F875
Pittsburgh, PA 15213
Phone: (412) 647-1706 / Fax: (412) 647-8398
Dr. David Lacomis
Dr. Sasa Zivkovic

 

University of Puerto Rico (San Juan, PR)

RCMI-Clinical Research Center
P.O. Box 365067
San Juan, PR 00936
Phone: (787) 759-0306, Ext. 237 / Fax: (787) 759-0305
Dr. Carlos A. Luciano

 

University of Texas Health Science Center San Antonio (San Antonio, TX)

Department of Neurology
7703 Floyd Curl Drive
MC 7883
San Antonio, Texas 78229
Phone: (210) 567-1945 / Fax: (210) 567-1948
Dr. Carlayne Jackson

 

University of Toronto/Sunnybrook HSC (Toronto, Ontario)

Sunnybrook ALS/Neuromuscular Clinic
UG-26
2075 Bayview Ave
Toronto, Ontario M4N 3M5
Canada
Phone: (416) 480-4213 / Fax: (416) 480-6817
Dr. Lorne Zinman

 

University of Utah (Salt Lake City, UT)

University of Utah Motor Neuron Disease Program
Room 3R152, 50 N. Medical Drive
Salt Lake City, Utah 84132
Phone: (801) 581-6873 / Fax: (801) 585-2054
Dr. Mark Bromberg

 

University of Vermont (Burlington, VT)

Department of Neurology
89 Beaumont Drive, Given Bldg
Room C-225
Burlington, VT 05405
Phone: (802) 847-4588 / Fax: 802-656-5678
Dr. Rup Tandan

 

University of Virginia (Charlottesville, VA)

University of Virginia Richard R. Dart ALS Clinic
Fontaine Research Park
500 Ray C. Hunt Drive
Charlottesville, VA 22903
Phone: (434) 924-3627 -or- (800) 251-3627
Dr. Lawrence H. Phillips, II
Dr. Ted Burns

 

University of Western Ontario, London Health Sciences Centre (London, Ontario, CA)

University Hospital
Room C7-120
339 Windermere Rd
London, Ontario, CA N6A 5A5
Phone: (519) 663-3874 / Fax: (519) 663-3609
Dr. Christen Shoesmith

 

Upstate Neurology Consultants, LLP (Albany, NY)

Upstate Neurology Consultants, LLP
3 Atrium Drive, Suite 205
Albany, NY 12205
Phone: (518) 438-0922 / Fax: (518) 438-1484
Dr. James Wymer

 

Vanderbilt University (Nashville, TN)

Vanderbilt University Medical Center
Department of Neurology
2311 Pierce Avenue
2233 South Garage Office Building Nashville, TN 37232
Phone: (615) 936-5766 / Fax: (615) 936-1263
Dr. Peter D. Donofrio

 

Virginia Mason Medical Center (Seattle, WA)

Virginia Mason Medical Center
P.O. Box 900
1100 Ninth Avenue
Seattle, WA 98111
Phone: (206) 223-6774 / Fax: (206) 625-7240
Dr. John M. Ravits

 

Wake Forest University (Winston-Salem, NC)

WFU Department of Neurology ALS Clinic
WFU Baptist Medical Center CompRehab Plaza Building
131 Miller Street
Winston-Salem NC 27157
Phone: (336) 716-2309 / Fax: (336) 716-9489
Dr. James Caress

 

Wayne State University (Detroit, MI)

Dept of Neurology
Wayne State University School of Medicine
UHC 8D
4201 St. Antoine
Detroit, Michigan 48201
Phone: (313) 577-1244 / Fax: (313) 745-4216
Dr. Richard A. Lewis

 

Washington University (St. Louis, MO)

Neuromuscular Disease Center MDA/ALS Clinic
Box 8111 Neurology
660 South Euclid Avenue
St. Louis, MO 63110
Phone: (314) 362-6981 / Fax: (314) 362-3752
Dr. Alan Pestronk

 

West Virginia University (Morgantown, WV)

RCB Health Sciences Center, Department of Neurology
1 Medical Center Drive, Box 9180
Morgantown, WV 26506
Phone: (304) 293-3527 / Fax: (304) 293-3352
Dr. Laurie Gutmann

 

Wilmington Health Associates (Wilmington, NC)

Wilmington Health Associates Main Campus
1202 Medical Center Drive
Wilmington, NC 28401
Phone: (910) 341-3300 / Fax: (910) 341-3419
Dr. Susan Torres

 

Yale University (New Haven, CT)

Yale University Department of Neurology/Neuromuscular Program
333 Cedar Street
New Haven, CT 06510
Phone: (203) 785-4085 / Fax: (203) 688-3109
Dr. Jonathan Goldstein
Dr. Steven Novella