ALSA/NEALS Patient Webinars

Genetic Research in ALS
Presented by Robert Brown, MD, PhD, DPhil (University of Massachusetts)
Tuesday June 18th, 2013 2pm ET
Registration information to come.

More of the 2013 schedule coming soon!  Thank you for your interest.
 

Archived NEALS Webinars
To view the entire collection of 2012 ALS Association/NEALS PALS webinars, go here.

Selection Trial of High Dosage Creatine & Two Dosages of Tamoxifen Webinar 5-20-13
Nazem Atassi, MD, (Massachusetts General Hospital) discussed study rationale, preliminary results, and next steps for the selection trial.  Watch it now.

Spring 2013 ALS Clinical Trial Pipeline Series 3-27-13
Merit Cudkowicz, MD, (Massachusetts General Hospital) provided an overview of ALS treatments and discussed the state of ALS clinical research in 2013.  Watch it now.

Read the remaining Q&A from this webinar.

Get the slide deck.

BENEFIT-ALS: Blinded Evaluation of Neuromuscular Effects and Functional Improvement with Tirasemtiv in ALS 3-12-13
Jeremy Shefner, MD (SUNY Upstate Medical University), Jinsy Andrews, MD (Cytokinetics, Inc.), and Andrew Wolff, MD (Cytokinetics, Inc.) discussed rationale and background of the phase IIB trial of tirasmetiv in ALS.  Watch it now.

Mexiletine for Patients with Sporadic ALS 1-11-13
Michael Weiss, MD (University of Washington) provided study rationale and background for the clinical trial of Mexiletine in patients with sporadic ALS (non-familial).  Watch it now.

ALS Clinical Trials: Expediting Therapy Development 11-30-12
Merit Cudkowicz, MD, MSc (Massachusetts General Hospital) reviewed ALS symptoms and diagnosis, provided an overview of ALS treatments, and discussed the ALS clinical research pipeline. 
Watch it now.

Read the remaining Q&A from this webinar.

Resistance and Endurance Exercise in ALS Trial Webinar 9-11-12
Nicholas Maragakis, MD (Johns Hopkins University) presented rationale for the Exercise Trial in ALS, which is recruiting patients with ALS in Baltimore, Boston, St. Louis, and Charlotte, NC and includes an at-home exercise regimen.  Watch it now.

Upper Motor Neuron Disease Research Webinar 7-2-12
Hiroshi Mitsumoto, MD (Columbia University) and Nazem Atassi, MD, MMSc, (Massachusetts General Hospital, Harvard Medical School) presented their research initiatives for people with early Upper Motor Neuron Disease (UMD) and Primary Lateral Sclerosis (PLS). Watch it now.

Determining the Effect of Nuedexta on Speech and Swallowing in ALS: A Multicenter Trial Webinar 6-5-12
Richard Smith MD (Center for Neurologic Study) and Jeremy Shefner MD, PhD, (SUNY Upstate Medical University), provided an overview of the scientific rationale and next steps forward for the upcoming NEALS trial of Nuedexta.  Watch it now.

Informed Consent and Ethical Considerations in Research Webinar 4-30-12
Nazem Atassi, MD, MMSc, (Massachusetts General Hospital, Harvard Medical School) and James Russell, DO, (Curt and Shonda Schilling ALS Clinic at Lahey Clinic) presented on the interplay of ethical considerations in research and informed consent. Watch it now.

Imaging Biomarkers Research Webinar 4-16-12
Nazem Atassi, MD, MMSc, (Massachusetts General Hospital, Harvard Medical School) and James Berry, MD, MPH, (Massachusetts General Hospital, Harvard Medical School) discussed the importance of biomarkers research and highlighted ongoing imaging and biofluid studies in ALS.  Watch it now.

Clinical Trial Design Webinar 3-20-12
Jeremy Shefner, MD, PhD, (SUNY Upstate Medical University) held an informational webinar providing a detailed background on trial design, including: process, expectations of phases, and the challenges of drug development.  Watch it now.

Stem Cell Webinar 3-13-12
Jonathan Glass, MD, (Emory ALS Center) and Clive Svendsen, PhD, (Cedars Sinai Medical Center) discussed the role of stem cell discovery and its contribution to ALS research.  Watch it now.

Supporting Advocacy Efforts Webinar 2-13-12
Richard Bedlack, MD, PhD, (Duke University) held an informational web seminar for people with ALS and caregivers interested in learning more about ways to advocate for clinical trial enrollment.
Watch it now.