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The mission of the Northeast ALS Consortium (NEALS) is to rapidly translate
scientific advances into clinical research and new treatments for people
with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease.

Resources for Patients & Families
Statement on U.S. BrainStorm Trial
We have had many inquiries regarding the BrainStorm Stem Cell Therapeutics Clinical Trial. BrainStorm is currently conducting a Phase IIa dose-escalating trial at the Hadassah Medical Center in Israel. We are continuing to follow the progress of the study in Israel and will keep the NEALS website current on all new trials and start dates.

Protocol information for the BrainStorm trial can be found on the US Government’s clinical trials website. Please continue to check here for new developments about this trial.

Resources for Researchers
National ALS Registry for ALS Researchers
(June 1, 2014)
If you are an ALS Researcher and would like to use the National ALS Registry to help recruit ALS patients for your study, click here. To see a list of ALS Researchers who are already using the National ALS Registry's research notificaton tool to help recruit patients for their studies, click here.

NEALS Databases
NEALS has six de-identified ALS trial databases available for mining. Collected since the birth of NEALS, these ALS trial databases are a great resource for ALS research. Get the data >>
NEALS Samples
Samples from the NEALS repository are available to researchers for the purpose of furthering the understanding of ALS or motor neuron disease and developing disease biomarkers.
Get the samples>>

News & Events

Annual NEALS Meeting

The 15th Annual NEALS Meeting will be held October 5 - 7, 2016 at the Opal Sands Resort in Clearwater Beach, Florida. Read more here.

NEALS at the AAN
Please join us on April 19th for a satellite membership meeting at the 2016 American Academy of Neurology Annual Meeting! A breakfast buffet will be available on site for all attendees. The meeting will be held from 7:30 – 8:30 AM in the Park Ballroom C of the Four Seasons Hotel Vancouver.

ALSA/NEALS Webinar: Updates in Nutritional Interventions for ALS

(March 4, 2016)
Hear from experts Edward Kasarskis, MD, PhD, University of Kentucky, Anne-Marie Wills, MD, MPH, and Jane Hubbard, MS, RD, LDN, Mass General Hospital. Register here.

ALSA/NEALS Webinar: A Phase II Study in ALS of the Effects of Mexiletine on Hyperexcitability of Motor Neurons

(February 11, 2016)
Dr. Michael Weiss will review the objective of this study which is to determine the effects of mexiletine on cortical hyperexcitability in ALS subjects using transcranial magnetic stimulation. Register here.

Confirmed: ALS Attacks Cognition and Behavior

(January 29, 2016)
Writing in the January 27 Neurology online, the study authors distinguished between symptoms of cognitive impairment and behavioral impairment among 274 people with ALS. Read more here.

New therapy halts progression of Lou Gehrig’s disease in mice

(January 28, 2016)
Researchers at Oregon State University announced today that they have essentially stopped the progression of ALS, or Lou Gehrig’s disease, for nearly two years in one type of mouse model used to study the disease. Read more here.

Long Island PALS Accepted as Research Ambassador at Annual NEALS Conference

(January 26, 2016)
How Frank Verdone finds inspiration through educating people about the disease. Read more here.

How One Man Brought the ALS Research Community Together

(January 21, 2016)
ALS patient Kevin Gosnell brought top doctors together, and now they're pledging to find a treatment in four years. Read more here.

Update on ALS BrainStorm Stem Cell Clinical Trials

(January 11, 2016)
The new study showed that implanting stem cells that produce neurotrophic factors (MSC-NTF) into either muscle or the intrathecal space surrounding the spinal cord, or both, after 6 months were shown to be safe and associated with only mild and transient adverse effects, principally headache and fever. Read more here.

PRO-ACT Database
(December 31, 2015)
We are excited to report that the PRO-ACT database is growing- Six new trials were added to the database, which now includes 23 trials and data from over 10,700 patients! The database is available for researchers on 

2015 International Symposium on ALS/MND
(December 22, 2015)
Congratulations to NEALS Co-Chair Dr. Terry Heiman-Patterson for winning this year's prestigious Forbes Norris Award! Read more here.

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