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Other Resources
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ALS Association
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.
www.alsa.org
ALS Therapy Alliance
Website focusing on the ALS Therapy Alliance's expertise and funding to advance their studies of amyotrophic lateral sclerosis.
www.alstherapyalliance.org
ALS Forums and Chat
An open support community for people affected by ALS/MND.
www.alsforums.com
ALS Information at the National Institute of Health (NIH)
Comprehensive overview of ALS provided by MedlinePlus, a service of the U.S. National Library of Medicine. Materials are also available in Spanish.
www.nlm.nih.gov/medlineplus/amyotrophiclateralsclerosis.html
National Institute of Neurological Disorders and Stroke
The primary NIH organization for research on Amyotrophic Lateral Sclerosis.
www.ninds.nih.gov
American Academy of Neurology
Website for the American Academy of Neurology (AAN), established in 1948. AAN is an international professional association of 24,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.
www.aan.com
Muscular Dystrophy Association (MDA)
The MDA’s website contains sections on advocacy, clinical trials, support groups, research news, and more.
www.mdausa.org
Project A.L.S.
Homepage for Project A.L.S., an organization committed to actively recruiting researchers from many disciplines to work together in four main areas: Basic Research, Genetics, Stem Cells, and Drug Screening.
www.projectals.org
Mass General ALS Clinic
Offers written material for people with ALS about the disease, the medical issues they may encounter, and management strategies for symptoms and daily living.
www.massgeneral.org/als
fALS Connect
fALS Connect is an online registry for people with familial ALS with the stated goal of facilitating research in ALS to develop treatments and ultimately a cure for this disease. By creating an online account, participants agree to be contacted about potential research opportunities. No identifying information is shared.
https://fals.patientcrossroads.org/
ALS Untangled
Scientific effort investigating alternative and off-label ALS treatments, while bringing together patients, clinicians, and scientists via Twitter, a social networking tool.
http://www.alsuntangled.com/index.html
PatientsLikeMe
PatientsLikeMe® creates new knowledge by charting the real-world course of disease through the shared experiences of patients. While patients interact to help improve their outcomes, the data they provide helps researchers learn how these diseases act in the real-world and accelerate the discovery of new, more effective treatments.
www.patientslikeme.com
[Follow company news on Twitter.com/PatientsLikeMe and http://blog.patientslikeme.com]
The ALS Forum
The ALS Forum is a web-based collaborative effort to accelerate and enhance ALS research by providing both veteran ALS researchers, as well as those new to the field, with comprehensive cutting edge coverage of ALS research and drug development news and ALS research resources.
www.ResearchALS.org
Prize4Life, Inc.
Prize4Life’s mission is to accelerate the discovery of treatments and a cure for ALS by using powerful incentives to attract new people and drive innovation. Visit our website to find out how the next ALS breakthrough could be yours.
http://www.prize4life.org
Robert Packard Center for ALS Research at Johns Hopkins
The Robert Packard Center for ALS Research at Johns Hopkins is an international scientific operation dedicated solely to curing the disease. We are unique in our approach to fighting ALS, in that we combine and facilitate scientific collaboration and ALS research with fundraising for the development of new treatments and to finding a cure.
www.alscenter.org
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