What are clinical trials and why are they important?

If you or a loved one has ALS, you know the heartbreaking frustration that there are not yet treatments that can stop or significantly slow the disease. You may not know that there are hundreds of scientists and doctors working hard to discover those treatments. That discovery depends, in large part, on the willing spirit of people with ALS who volunteer to be a part of a clinical trial…

read more


Getting Involved in a Clinical Trial

Most ALS patients and caregivers want to do everything they can to help find new treatments for the disease. The idea of trying an experimental therapy is often regarded positively, despite knowing that risks may be present. However, some people have misgivings when they learn that some participants in a trial may receive a placebo rather than the drug being tested….

read more


Understanding Placebo-Controlled Trials

Familarizing yourself with terms related to clinical trials can improve your understanding of the clinical trial process and can better inform your decision to enroll in a clinical trial. A collection of terms from this website is provided here....

read more


Clinical Trial Definitions

People with ALS who enroll in a clinical trial are contributing to improved health care for everyone with the disease. Even when the results of a trial are negative, we learn that much more about the disease, and how to look for more promising new treatments... .

read more


How to Navigate Clinicaltrials.gov

Clinicaltrials.gov is a central database of clinical trials for all conditions, including ALS. It is an important resource for finding a clinical trial that is right for you…..

read more