Trial News & Events

PALS Webinar - Cannabinoid use in ALS: Only symptom management or more?

Please join us on March 23rd for a webinar discussion on cannabinoid use in ALS led by Drs. Mark Ware and Angela Genge from the Montreal Neurological Institute and Hospital. Dr. Ware will discuss the mechanism of action of cannabinoids, while Dr. Genge will discuss their use in symptom management, and possible effect on disease course.

ALS At Home

Barrow Neurological Institute is seeking individuals to participate in a remote research study called ALS AT HOME, enrolling under the direction of Dr. Jeremy Shefner.

NEALS Principal Investigator Training Seminar

NEALS is pleased to announce a full day training session for NEALS investigators interested in developing and conducting multi-center ALS clinical trials as Principal Investigators.

Watch Presentations from the 6th Annual Les Turner Symposium on ALS

At the 6th Annual Les Turner Symposium on ALS and NeuroRepair, sponsored by the Les Turner ALS Research and Patient Center at Northwestern Medicine held in November 2016, a crowd of over 175 attendees learned the latest in ALS research and patient care from experts in the field.

PALS Webinar: A User’s Guide to Genetic Testing in ALS

Join Genetic Counselor and Assistant Professor at The Ohio State Wexner Medical Center, Jennifer Roggenbuck, on January 20th at 2:00 PM EST for a live webinar to learn more about genetic testing in ALS.

27th International Symposium on ALS/MND

Over 53 NEALS members authored posters presented at the 27th International Symposium on ALS/MND; 8 members chaired plenary sessions and 15 NEALS members presented platform presentations.

Use of Genetic Testing in Amyotrophic Lateral Sclerosis by Neurologists

There have been a number of publications describing the important role of genetic counseling in amyotrophic lateral sclerosis (ALS). While such attempts at guiding who should undergo genetic testing are welcome, they are put forth in a vacuum because there are no data on where ALS neurologists stand in terms of genetic testing and counseling for the disease, and in terms of what is considered to be familial and sporadic ALS.