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Find out about upcoming NEALS meetings, learn more about our trial resources, and stay in touch with the latest ALS research findings.
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The mission of Northeast ALS Consortium (NEALS) is to rapidly translate
scientific advances into clinical research and new treatments for people
with Amyotrophic Lateral Sclerosis (ALS) and motor neuron disease.

Resources for Patients & Families
Statement on U.S. BrainStorm Trial
We have had many inquiries regarding the BrainStorm Stem Cell Therapeutics Clinical Trial. BrainStorm is currently conducting a Phase IIa dose-escalating trial at the Hadassah Medical Center in Israel. We are working with BrainStorm on a planned Phase II study in the U.S. and hope to begin the trial this year. We are continuing to follow the progress of the study in Israel and will keep the NEALS website current on all new trials and start dates.

Protocol information and eligibility criteria for the BrainStorm trial can be found on the US Government’s clinical trials website. Please continue to check here for new developments about this trial.

ALS Research Pipeline Webinar - Summer 2014
(August 8, 2014) 
Dr. Merit Cudkowicz (Massachusetts General Hospital) discussed the ALS clinical trial pipeline and answered questions about the current state of clinical research in ALS and motor neuron disease. The full recording, including the Q&A session can be found here
 
NeuRx® Diaphragm Pacing System™ (DPS) In Participants with Amyotrophic Lateral Sclerosis: An Informational Webinar  
(August 6, 2014)
Dr. Jeremy Shefner and Dr. Jonathan Katz presented the DPS in ALS clinical trial and discussed why the completion of this particular study is so important for the PALS population. The full recording and Q&A session can be found here
 
 
 
 
Resources for Researchers
National ALS Registry for ALS Researchers
(June 1, 2014)
If you are an ALS Researcher and would like to use the National ALS Registry to help recruit ALS patients for your study, click here. To see a list of ALS Researchers who are already using the National ALS Registry's research notificaton tool to help recruit patients for their studies, click here.


NEALS Members Attend the American Academy of Neurology Annual Meeting in Philadelphia

(April 30, 2014)
The 66th American Academy of Neurology Annual Meeting was held April 26th-May 3rd at the Pennsylvania Convention Center in Philadelphia, PA. Read more>>

NEALS Databases
NEALS has six de-identified ALS trial databases available for mining. Collected since the birth of NEALS, these ALS trial databases are a great resource for ALS research. Get the data >>
 
NEALS Samples
Samples from the NEALS repository are available to researchers for the purpose of furthering the understanding of ALS or motor neuron disease and developing disease biomarkers.
Get the samples>>

 
 
News & Events
 
NEALS Sites Continue to Participate in ALS Ice Bucket Challenge
The ALS Ice Bucket Challenge, started by PALS and Boston native Pete Frates, has been steadily raising awareness for the disease and encouraging donations for ALS research since its inception in the summer of 2014. Over the last few months, participation in the ALS #icebucketchallenge has gone viral on social media. The challenge has seen millions of people dump a bucket of ice water on their head and then nominate three others to either do the same or to donate money to the cause. NEALS and the ALS Multidisciplinary Clinic at Mass General Hospital completed the challenge and nominated three other NEALS sites (Drexel, SUNY Upstate, and Johns Hopkins) to do the same, encouraging those sites to then challenge other NEALS sites. Over 50 NEALS sites around the US and Canada have completed the challenge to date. To view each sites challenge video, click here.

Please consider a donation to the NEALS Consortium by clicking here.

2014 Annual NEALS Meeting Oct. 22 - 24th
The 13th Annual Meeting will take place in late October at the Sandpearl Resort in Clearwater Beach, Florida. For registration information please contact Tara Lincoln, (tlincoln@partners.org).

Dr. Cudkowicz Appears on ALS Crowd Radio

(July 21, 2014)
NEALS co-chair Merit Cudkowicz, MD, MSc appeared on the first installment of ALS Crowd radio to talk about the latest in ALS therapy and innovation.  Read more


2014 ALS Association Advocacy Day Highlights
(May 20, 2014)
This years ALSA Advocacy Day and Public Policy Conference took place in Washington, DC from May 7 to May 9. Read more


2014 Regional CRLI Highlights
(May 19, 2014)
The second annual Philadelphia Clinical Research Learning Institute was held May 2nd through the 4th in Philadelphia, PA. Read more




 
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